Introduction to Patient-Reported Outcomes (PROs): York, UK

This one-day course, organised by the York Health Economics Consortium (YHEC), will provide attendees with a background to Patient-reported outcomes (PROs) and their use in the pharmaceutical and public sector with an overview on differences, as well as synergies.

PROs are increasingly being used both in the pharmaceutical industry, as well as in the National Health Service (NHS) and the public sector to capture the impact of healthcare interventions from the patient perspective. PROs have their distinct use in the private and public sector. For instance, in sponsored clinical trials PROs may be used to capture potential patient benefits of new medicinal products. On the other hand within the NHS, patient-reported outcomes and experiences are routinely recorded for a number of surgical procedures to measure the impact and quality of care received, health-related quality of life (HRQOL). However, despite these differences there is a considerable degree of overlap in the use of PROs in these sectors.

Further topics that will be covered are the instruments used to collect PRO data, including the development and validation of these instruments, the differences between disease and treatment specific PROs and generic instruments, electronic PROs, and an overview of the key areas of interaction between PROs, healthcare agencies, service provision and commissioning.

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