No Choice of Outcomes About us Without us!

Are you passionate about using patient important outcomes in research? Do you want to learn how agreeing such outcomes with key stakeholders leads to the development of a core outcome set - helping reduce waste and improving the quality of research? Then come and join our webinar. We will provide an overview of core outcome sets (you can watch a brief introductory animation here first). Two patients and a patient organisation representative who have all been involved in developing core outcome sets will join the session and briefly present their experiences. We will also explore the challenges of patient input into core outcome set development and provide links for further information. Join us for our action-packed webinar!

This session is aimed at organisations and individuals working in patient and public involvement (PPI) as well as patient organisations and patients / the public undertaking PPI in research who have an interest in patient important outcomes for research. (The webinar will be presented in plain language and will include patient organisation stories).

Presenter Bios

Paula Williamson: Professor of Biostatistics, Lead for the COMET (Core Outcome Measures in Effectiveness Trials) Initiative. (The COMET Initiative brings together people interested in developing and applying core outcome sets). 

Bridget Young: Professor of Psychology and Co-Chair of the COMET People and Patient Participation Involvement and Engagement (PoPPIE) Working Group

Heather Bagley: COMET Initiative Patient and Public Involvement Co-ordinator

John Turner: Former patient participant in a core outcome set and public co-chair of the PoPPIE Working Group

Maureen Smith: Patient Research Partner in a core outcome set study and public member of the PoPPIE Working Group

Tess Harris: Chief Executive at Polycystic Kidney Disease Charity UK.


Sign up

Thursday, 27th February 2020 16:00 UTC [check the time in your time zoneSIGN UP HERE

You will need a Cochrane Account to sign up for this webinar. If you don’t have a Cochrane Account you will be able to register for free on the following page. You will be able to use this account for all future activity. A brief guidance on how to sign up using your Cochrane Account is available here and if you have any problems, please contact training@cochrane.org