Welcome to this series of Cochrane Learning Live webinars, all dedicated to the topic of Patient and Public Involvement (PPI) in health and social care research. PPI is a rapidly growing, important global movement aspiring to produce better and more relevant research resulting in services and treatments that patients and the public need. For this reason, a number of organisations and individuals came together to form the International PPI Network.

We are pleased to be joined throughout the series by leading experts in this field, and you can find out more about each session and access the webinar recordings below. All sessions are freely open to everyone. 

Upcoming sessions

Tuesday 26 November 2024, 17:00 UTC  
Storytelling for impact: Creating a storytelling program for patient partners in research
Leah Getchell, MA, MSW, RSW, Anthropologist & Social Worker. Modality Coordinator for the Regional Renal Program, London, Ontario. 
Teresa Atkinson, Patient partner & Project Lead for the Kidney Wellness Hub, Kidney Foundation of Canada. 
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Wednesday 4 December 2024, 15:00 UTC  
Engaging indigenous patient partners in patient-oriented research in Canada
Marie-Claude Tremblay, Associate Professor, Department of Family Medicine and Emergency Medicine, Université Laval
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Watch the recordings of previous sessions

HEAlth caRe needs of the Deaf (HEARD): Using community-based participatory research to address the healthcare access challenges of the Deaf community in Malaysia [October 2024]
Professor Uma Palanisamy, Professor of Biochemistry, Jeffrey Cheah School of Medicine and Health Sciences, Monash University Malaysia
[click here for recording & accompanying materials]

Two sides of the camera: Collaboration, Co-creation and Co-production in public health research [September 2024]
Prof Lynn Hendricks, Associate Professor, Stellenbosch University.
Dr Thaakirah Toefy, Medical Doctor, Western Cape Government. 
Mr Reshaan Dollie, Visual Anthropologist, The Dollie House.
Mrs Rizqah Dollie, Visual Anthropologist, The Dollie House.
[click here for recording & accompanying materials]

‘Let’s yarn about sleep’: Co-designing a movement for sleep health equity in First nations communities in Australia [August 2024]
Associate Professor Yaqoot Fatima, Principal Research Fellow, UQ Poche Centre for Indigenous Health, University of Queensland
Wayne Williams, Lecturer in Indigenous Health, Medical School (Rural Clinical School), Faculty of Medicine, University of Queensland
[Click here for recording & accompanying materials] 

Shared learning: How to apply PPI in multinational and multi-group research [October 2023]
Mogens Horder, Professor at the Unit for Patient Perspective in Health Care and Research, Dept of Public Health, University of Southern Denmark Alexandra Alves-Rodrigues, Invited Researcher, Dept of Public Health, University of Southern Denmark
[click here for recording & accompanying materials]

Research priority setting with patients and the public [September 2023] 
Beccy Maeso, Executive Lead, James Lind Alliance (JLA)
Dr Zelalem Mengistu, Associate professor of Obstetrics, Gynaecology and Urogynecology, University of Gondar, Ethiopia
[click here for recording & accompanying materials]

SPFT Youth PPI Café: A framework for the meaningful involvement of young people in mental health research [August 2023]
Abigail Thomson, PhD student & PPI consultant, Queen Mary University of London
Dr Sam Robertson, Sussex Partnership Foundation Trust 
[click here for recording & accompanying materials]

Developing our international PPI evidence base through high quality reporting: The evolution and use of GRIPP2 [November 2021]
Sophie Staniszewska, Professor of Patient and Public Involvement and Experiences of Care, Warwick Medical School, England.
Richard Stephens, Patient Advocate. 
[click here for recording & accompanying materials]

Public Engagement and Involvement in Health Research: How well are we doing? Views from the global north vs the global south [July 2020]
Dr Gary Hickey, Senior Public Involvement Manager, Wessex Institute.
Kati Turner, Survivor researcher, Population Health Research Institute, St George’s University of London. 
Dr Anastasia Koch, Co-founder of Eh!woza
Nabeel Petersen, Co-founder of the South African-based NPO the Pivot Collective
[click here for recording & accompanying materials]

Working together to beat covid-19: engaging and involving patients and public (second webinar) [June 2020]
Professor Allison Tong, Principal Research Fellow, Sydney School of Public Health, The University of Sydney.
Anne McKenzie, Senior Manager for Community Engagement,Telethon Kids Institute in Perth, Western Australia.
Dr Mary Chambers, Head of Public and Community Engagement, Oxford University Clinical Research Unit Vietnam.
Dr Gary Hickey, Senior Public Involvement Manager, Wessex Institute.
Richard Morley, Cochrane's Consumer Engagement Officer.
[click here for recording & accompanying materials]

Working together to beat covid-19: engaging and involving patients and public [June 2020]
Jeremy Taylor OBE, NIHR Director for Public Voice. 
Richard Morley, Cochrane's Consumer Engagement Officer.
Dr Gary Hickey, Senior Public Involvement Manager, Wessex Institute.
Maureen Smith, Chair, Cochrane’s Consumer Executive.
[click here for recording & accompanying materials]

No Choice of Outcomes About us Without us! [February 2020]
Paula Williamson, Professor of Biostatistics, Lead for the COMET Initiative
Bridget Young, Professor of Psychology & Co-Chair, COMET PoPPIE Working Group
Heather Bagley, COMET Initiative Patient & Public Involvement Co-ordinator
John Turner, Public co-chair of the PoPPIE Working Group
Maureen Smith, Patient Research Partner in a core outcome set study & public member, PoPPIE Working Group
Tess Harris, Chief Executive at Polycystic Kidney Disease Charity UK.
[click here for recording & accompanying materials]

Experiences from implementation of PPI in healthcare research in Denmark 2009-2019 [February 2020]
Mogens Hørder, professor, MD, DMSC, Department of Public Health, University of Southern Denmark
[click here for recording & accompanying materials]

Building trust and sharing power for co-creation in Aboriginal health research [January 2020]
Simone Sherriff, Project officer, Study of Environment on Aboriginal Resilience and Child Health (SEARCH)
Hilary Miller, Public health researcher, ReachOut Australia.
[click here for recording & accompanying materials]

Public Participation Impact: the other PPI [January 2020]
Eddy Nason, Assistant Director, Ontario SPOR SUPPORT Unit
Emily Nicholas Angl, Director of Health Engagement and Communication, Reframe Health Lab
[click here for recording & accompanying materials]

Stakeholder Involvement in Evidence Synthesis [November 2019]
Dr Neal R Haddaway, Senior Research Fellow
[click here for recording & accompanying materials]

Co-production in Action [November 2019]
Dr Gary Hickey, Senior Public Involvement Manager at INVOLVE, who leads on co-production.
Nathaniel Mills, Paediatric Programme Manager, NIHR Devices for Dignity MedTech Co-operative
Gemma Wheeler, Design Researcher, Lab4Living, Sheffield Hallam University
[click here for recording & accompanying materials]

Patient and public involvement in research: What, why and how? [August 2019]
Dr Gary Hickey, Senior Public Involvement Manager at INVOLVE
Kati Turner, Researcher at the Population Health Research Institute at St George’s, University of London 
[click here for recording & accompanying materials]