Consumer involvement
Engaging indigenous patient partners in patient-oriented research in Canada [December 2024] *International PPI Network series*
Marie-Claude Tremblay, Associate Professor, Department of Family Medicine and Emergency Medicine, Université Laval
[click here for recording & accompanying materials]
Storytelling for impact: Creating a storytelling program for patient partners in research [November 2024] *International PPI Network series*
Leah Getchell, MA, MSW, RSW, Anthropologist & Social Worker. Modality Coordinator for the Regional Renal Program, London, Ontario.
Teresa Atkinson, Patient partner & Project Lead for the Kidney Wellness Hub, Kidney Foundation of Canada.
[click here for recording & accompanying materials]
Leah Getchell, MA, MSW, RSW, Anthropologist & Social Worker. Modality Coordinator for the Regional Renal Program, London, Ontario.
Teresa Atkinson, Patient partner & Project Lead for the Kidney Wellness Hub, Kidney Foundation of Canada.
[click here for recording & accompanying materials]
HEAlth caRe needs of the Deaf (HEARD): Using community-based participatory research to address the healthcare access challenges of the Deaf community in Malaysia [October 2024] *International PPI Network series*
Professor Uma Palanisamy, Professor of Biochemistry, Jeffrey Cheah School of Medicine and Health Sciences, Monash University Malaysia
[click here for recording & accompanying materials]
Professor Uma Palanisamy, Professor of Biochemistry, Jeffrey Cheah School of Medicine and Health Sciences, Monash University Malaysia
[click here for recording & accompanying materials]
Two sides of the camera: Collaboration, Co-creation and Co-production in public health research [September 2024]
*International PPI Network series*
Prof Lynn Hendricks, Associate Professor, Stellenbosch University.
Dr Thaakirah Toefy, Medical Doctor, Western Cape Government.
Mr Reshaan Dollie, Visual Anthropologist, The Dollie House.
Mrs Rizqah Dollie, Visual Anthropologist, The Dollie House.
[Click here for recording & accompanying materials]
*International PPI Network series*
Prof Lynn Hendricks, Associate Professor, Stellenbosch University.
Dr Thaakirah Toefy, Medical Doctor, Western Cape Government.
Mr Reshaan Dollie, Visual Anthropologist, The Dollie House.
Mrs Rizqah Dollie, Visual Anthropologist, The Dollie House.
[Click here for recording & accompanying materials]
‘Let’s yarn about sleep’: Co-designing a movement for sleep health equity in First nations communities in Australia [August 2024] *International PPI Network series*
Associate Professor Yaqoot Fatima, Principal Research Fellow, UQ Poche Centre for Indigenous Health, University of Queensland
Wayne Williams, Lecturer in Indigenous Health, Medical School (Rural Clinical School), Faculty of Medicine, University of Queensland
[Click here for recording & accompanying materials]
Associate Professor Yaqoot Fatima, Principal Research Fellow, UQ Poche Centre for Indigenous Health, University of Queensland
Wayne Williams, Lecturer in Indigenous Health, Medical School (Rural Clinical School), Faculty of Medicine, University of Queensland
[Click here for recording & accompanying materials]
Bridging the gap: Knowledge user involvement in rapid reviews [October 2023] *Rapid reviews webinar series
Chantelle Garritty, Manager, Global Health and Guidelines Division, Public Health Agency of Canada (PHAC). Professor, School of Epidemiology and Public Health, University of Ottawa. Co-convenor of the Cochrane Rapid Reviews Methods Group.
Candyce Hamel, Senior Epidemiologist, Canadian Association of Radiologists. Co-convenor or the Cochrane Rapid Reviews Methods Group
[Click here for recording & accompanying slides]
Chantelle Garritty, Manager, Global Health and Guidelines Division, Public Health Agency of Canada (PHAC). Professor, School of Epidemiology and Public Health, University of Ottawa. Co-convenor of the Cochrane Rapid Reviews Methods Group.
Candyce Hamel, Senior Epidemiologist, Canadian Association of Radiologists. Co-convenor or the Cochrane Rapid Reviews Methods Group
[Click here for recording & accompanying slides]
Shared learning: How to apply PPI in multinational and multi-group research [October 2023] *International PPI Network series*
Mogens Horder, Professor at the Unit for Patient Perspective in Health Care and Research, Dept of Public Health, University of Southern Denmark Alexandra Alves-Rodrigues, Invited Researcher, Dept of Public Health, University of Southern Denmark
[click here for recording & accompanying materials]
Mogens Horder, Professor at the Unit for Patient Perspective in Health Care and Research, Dept of Public Health, University of Southern Denmark Alexandra Alves-Rodrigues, Invited Researcher, Dept of Public Health, University of Southern Denmark
[click here for recording & accompanying materials]
Research priority setting with patients and the public [September 2023] *International PPI Network series*
Beccy Maeso, Executive Lead, James Lind Alliance (JLA)
Dr Zelalem Mengistu, Associate professor of Obstetrics, Gynaecology and Urogynecology, University of Gondar, Ethiopia
[click here for recording & accompanying materials]
Beccy Maeso, Executive Lead, James Lind Alliance (JLA)
Dr Zelalem Mengistu, Associate professor of Obstetrics, Gynaecology and Urogynecology, University of Gondar, Ethiopia
[click here for recording & accompanying materials]
SPFT Youth PPI Café: A framework for the meaningful involvement of young people in mental health research [August 2023] *International PPI Network series*
Abigail Thomson, PhD student & PPI consultant, Queen Mary University of London
Dr Sam Robertson, Sussex Partnership Foundation Trust
[click here for recording & accompanying materials]
Abigail Thomson, PhD student & PPI consultant, Queen Mary University of London
Dr Sam Robertson, Sussex Partnership Foundation Trust
[click here for recording & accompanying materials]
What is ‘physical rehabilitation’? A model developed with stroke survivors, carers and physiotherapists for a Cochrane Review on stroke rehabilitation. [March 2022]
Alex Todhunter-Brown (formerly Pollock), Senior Research Fellow, Nursing, Midwifery and Allied Health Professions (NMAHP) Research Unit, Glasgow Caledonian University.
Gillian Baer, Senior Lecturer in Physiotherapy, School of Health Sciences, Queen Margaret University, Edinburgh.
Richard Morley, Cochrane's Consumer Engagement Officer.
[click here for recording & accompanying materials]
Alex Todhunter-Brown (formerly Pollock), Senior Research Fellow, Nursing, Midwifery and Allied Health Professions (NMAHP) Research Unit, Glasgow Caledonian University.
Gillian Baer, Senior Lecturer in Physiotherapy, School of Health Sciences, Queen Margaret University, Edinburgh.
Richard Morley, Cochrane's Consumer Engagement Officer.
[click here for recording & accompanying materials]
Developing our international PPI evidence base through high quality reporting: The evolution and use of GRIPP2. [November 2021] *International PPI Network series*
Sophie Staniszewska, Professor of Patient and Public Involvement and Experiences of Care, Warwick Medical School, England.
Richard Stephens, Patient Advocate.
[click here for recording & accompanying materials]
Sophie Staniszewska, Professor of Patient and Public Involvement and Experiences of Care, Warwick Medical School, England.
Richard Stephens, Patient Advocate.
[click here for recording & accompanying materials]
Better health decisions: using Cochrane evidence in shared decision-making. [May 2021] *Virtually Cochrane webinar*
Richard Morley, Cochrane's Consumer Engagement Officer.
Sally Crowe, Director Crowe Associates.
Richard Morley, Cochrane's Consumer Engagement Officer.
Sally Crowe, Director Crowe Associates.
Kit Byatt, Director of Education, Forrest MLS.
Tracey Howe, Director of the Cochrane-Campbell Global Ageing Partnership, Co-chair of Cochrane’s Governing Board.
Helen Bulbeck, Director of Services and Policy at brainstrust.
Brian Devlin, Cochrane UK Consumer Champion.
Richard Morley, Cochrane's Consumer Engagement Officer.
Karen Morley, Cochrane Consumer & volunteer with the Cochrane Common Mental Disorders Review Group.
Nick Meader, Senior Editor, Cochrane Common Mental Disorders review group.
Maureen Smith, Chair, Cochrane’s Consumer Executive.
Dr. Janet Jull, Assistant Professor at Queen’s University in Kingston, Ontario, Canada.
[click here for recording & accompanying materials]
Dr. Janet Jull, Assistant Professor at Queen’s University in Kingston, Ontario, Canada.
[click here for recording & accompanying materials]
Public Engagement and Involvement in Health Research: How well are we doing? Views from the global north vs the global south [July 2020] *International PPI Network series*
Dr Gary Hickey, Senior Public Involvement Manager, Wessex Institute.
Kati Turner, Survivor researcher, Population Health Research Institute, St George’s University of London.
Dr Anastasia Koch, Co-founder of Eh!woza
Nabeel Petersen, Co-founder of the South African-based NPO the Pivot Collective
[click here for recording & accompanying materials]
Dr Gary Hickey, Senior Public Involvement Manager, Wessex Institute.
Kati Turner, Survivor researcher, Population Health Research Institute, St George’s University of London.
Dr Anastasia Koch, Co-founder of Eh!woza
Nabeel Petersen, Co-founder of the South African-based NPO the Pivot Collective
[click here for recording & accompanying materials]
Working together to beat COVID-19: engaging and involving patients and public (second webinar) [June 2020] *International PPI Network series*
Professor Allison Tong, Principal Research Fellow, Sydney School of Public Health, The University of Sydney.
Anne McKenzie, Senior Manager for Community Engagement,Telethon Kids Institute in Perth, Western Australia.
Dr Mary Chambers, Head of Public and Community Engagement, Oxford University Clinical Research Unit Vietnam.
Dr Gary Hickey, Senior Public Involvement Manager, Wessex Institute.
Richard Morley, Cochrane's Consumer Engagement Officer.
[click here for recording & accompanying materials]
Dr Mary Chambers, Head of Public and Community Engagement, Oxford University Clinical Research Unit Vietnam.
Dr Gary Hickey, Senior Public Involvement Manager, Wessex Institute.
Richard Morley, Cochrane's Consumer Engagement Officer.
[click here for recording & accompanying materials]
Working together to beat covid-19: engaging and involving patients and public [June 2020] *International PPI Network series*
Jeremy Taylor OBE, NIHR Director for Public Voice.
Richard Morley, Cochrane's Consumer Engagement Officer.
Dr Gary Hickey, Senior Public Involvement Manager, Wessex Institute.
Maureen Smith, Chair, Cochrane’s Consumer Executive.
[click here for recording & accompanying materials]
Jeremy Taylor OBE, NIHR Director for Public Voice.
Richard Morley, Cochrane's Consumer Engagement Officer.
Dr Gary Hickey, Senior Public Involvement Manager, Wessex Institute.
Maureen Smith, Chair, Cochrane’s Consumer Executive.
[click here for recording & accompanying materials]
No Choice of Outcomes About us Without us! [February 2020] *International PPI Network series*
Paula Williamson, Professor of Biostatistics, Lead for the COMET Initiative
Bridget Young, Professor of Psychology & Co-Chair, COMET PoPPIE Working Group
Heather Bagley, COMET Initiative Patient & Public Involvement Co-ordinator
John Turner, Public co-chair of the PoPPIE Working Group
Maureen Smith, Patient Research Partner in a core outcome set study & public member, PoPPIE Working Group
Tess Harris, Chief Executive at Polycystic Kidney Disease Charity UK.
[click here for recording & accompanying materials]
Paula Williamson, Professor of Biostatistics, Lead for the COMET Initiative
Bridget Young, Professor of Psychology & Co-Chair, COMET PoPPIE Working Group
Heather Bagley, COMET Initiative Patient & Public Involvement Co-ordinator
John Turner, Public co-chair of the PoPPIE Working Group
Maureen Smith, Patient Research Partner in a core outcome set study & public member, PoPPIE Working Group
Tess Harris, Chief Executive at Polycystic Kidney Disease Charity UK.
[click here for recording & accompanying materials]
Experiences from implementation of PPI in healthcare research in Denmark 2009-2019 [February 2020] *International PPI Network series*
Mogens Hørder, professor, MD, DMSC, Department of Public Health, University of Southern Denmark
[click here for recording & accompanying materials]
Mogens Hørder, professor, MD, DMSC, Department of Public Health, University of Southern Denmark
[click here for recording & accompanying materials]
Building trust and sharing power for co-creation in Aboriginal health research [January 2020] *International PPI Network series*
Simone Sherriff, Project officer, Study of Environment on Aboriginal Resilience and Child Health (SEARCH)
Hilary Miller, Public health researcher, ReachOut Australia.
[click here for recording & accompanying materials]
Simone Sherriff, Project officer, Study of Environment on Aboriginal Resilience and Child Health (SEARCH)
Hilary Miller, Public health researcher, ReachOut Australia.
[click here for recording & accompanying materials]
Public Participation Impact: the other PPI [January 2020] *International PPI Network series*
Eddy Nason, Assistant Director, Ontario SPOR SUPPORT Unit
Emily Nicholas Angl, Director of Health Engagement and Communication, Reframe Health Lab
[click here for recording & accompanying materials]
Eddy Nason, Assistant Director, Ontario SPOR SUPPORT Unit
Emily Nicholas Angl, Director of Health Engagement and Communication, Reframe Health Lab
[click here for recording & accompanying materials]
Stakeholder Involvement in Evidence Synthesis [November 2019] *International PPI Network series*
Dr Neal R Haddaway, Senior Research Fellow
[click here for recording & accompanying materials]
Dr Neal R Haddaway, Senior Research Fellow
[click here for recording & accompanying materials]
Co-production in Action [November 2019] *International PPI Network series*
Dr Gary Hickey, Senior Public Involvement Manager at INVOLVE, who leads on co-production.
Nathaniel Mills, Paediatric Programme Manager, NIHR Devices for Dignity MedTech Co-operative
Gemma Wheeler, Design Researcher, Lab4Living, Sheffield Hallam University
[click here for recording & accompanying materials]
Dr Gary Hickey, Senior Public Involvement Manager at INVOLVE, who leads on co-production.
Nathaniel Mills, Paediatric Programme Manager, NIHR Devices for Dignity MedTech Co-operative
Gemma Wheeler, Design Researcher, Lab4Living, Sheffield Hallam University
[click here for recording & accompanying materials]
Patient and public involvement in research: What, why and how? [August 2019] *International PPI Network series*
Dr Gary Hickey,Senior Public Involvement Manager at INVOLVE
Kati Turner, Researcher at the Population Health Research Institute at St George’s, University of London
[click here for recording & accompanying materials]
Dr Gary Hickey,Senior Public Involvement Manager at INVOLVE
Kati Turner, Researcher at the Population Health Research Institute at St George’s, University of London
[click here for recording & accompanying materials]
Involving People: new learning resource for systematic review authors [November 2017]
Richard Morley, Cochrane Consumer Co-ordinator
Richard Morley, Cochrane Consumer Co-ordinator
Pauline Campbell, ACTIVE project
[click here for accompanying materials]
[click here for accompanying materials]
Involving consumers in Cochrane reviews: learning from the ACTIVE project [October 2016]
Alex Pollock and Pauline Campbell, Glasgow Caledonian University
[click here for recording and accompanying materials]
Consumers for the terrified: Exploring new ways of involving consumers in the work of Cochrane [April 2016]
Richard Morley, Cochrane Consumer Network Co-ordinator
[click here for recording and accompanying materials]
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